For about 15 years, I faired the storms of parenting both of my boys without a husband or consistent father figure for them. I’ve leaned on prayers and the many family members and friends that became a village around us. Because it “takes a village to raise a child” and in this case, I needed every … More Plus One
“But for family and caregivers, this brutal list is absolutely heartbreaking to watch them live out and verbalize these thoughts. This is as real as it is going to get for us. Beyond these thoughts he has actions have followed suit out of aggression and anxiety, and has gone as far as stating he’d rather … More A Rabbit Hole: Depression and DMD
“…it’s hard. It’s not just transitioning to a wheelchair; it is transitioning into a whole new way of life.” The GiggleHut Mom I love beats. There’s nothing like a good song that moves you, keeps your head nodding, and lyrics that sing straight to your heart. But when we think of beats in terms of … More The Beat
As you may know we’ve waited almost a year to see a highly recommended and sought after doctor in the Muscular Dystrophy community. She’s established a well known Neuromuscular/ Duchenne Muscular Dystrophy Clinic in Worcester, M.A. and leads research in DMD right here at UMASS. It seemed like just yesterday when I contacted Dr. Wong … More **Jonathan News 2**
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